I Understand Your Pain

SherryBerry
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Posted by SherryBerry

on Dec 18, 2007

I am a single mother raising two teenagers.  Im not on aidpage for no one particular reason, there are many.  Most of us on here are going and/or have gone through some hard times.  I am in hope of meeting new friends and lending a shoulder if someone should need some emotional support.  In return you may find that I am in need of your shoulder as well.

 

I am trying to live with the fact that my 17 year old son has a rare disease known as Wegeners Granulomatosis and there is no cure.  This disease was caught in some of the last stages, therefore he is catagorized as terminal.. So, I can feel everyones pain who is having a trying time as well..  Maybe this site will help keep our minds off of things for a bit, thats what I am hoping for..  If there is anything I could do for anyone I would, I can offer you a friend or just someone to talk to..

 

If there are any doctors or medical proffesionals on the site, I would be so grateful if you could tell me more about this disease.. Thanks

Categories: support, Help, children, Medical, terminal illness, rare disease
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SherryBerry
Here since: Nov 30, 2007
Female, 39
Secretary
Languages: English
I am a single mother raising two teenagers.  Im not on aidpage for no one particular reason, there are many.  Most of us on here are going and/or have gone through some hard times.  I am in hope of me...see full post
hard working christian family in trouble due to rare disease
I was recently diagnosed with a rare autoimmune disease termed Dermatomyositis.  This disease eats away skin and muscle, much like osteoporosis eats holes in bone.  This is a very bad disease, causing...see full post
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